The time has come to further challenge biomedical and clinical thinking about dementia, which has for so long underpinned policy and practice. This book takes a rights-based approach to expand the debate.
Applying a social constructionist lens, it builds on earlier critical perspectives by bringing together concepts including disability, social inclusion, personhood, equality, participation, empowerment, autonomy and solidarity. Launching the debate into new and exciting territory, the book argues that people living with dementia come within the UN Convention on the rights of people with disability and therefore have full access to all the rights enshrined in it.
A human rights lens has not to date been fully applied to interrogate the lived experience and policy response to dementia. With the fresh analytical tools provided in this book, practitioners and policy makers will be enabled to work towards improving the quality of life and quality of care for all those affected by dementia.
Suzanne Cahill has been employed as National Director of the Dementia Services Information and Development Centre based at St James’s Hospital in Ireland between 1999 and 2017. She is also an Adjunct Professor in the School of Social Work and Social Policy at Trinity College Dublin, Ireland. She has over 30 years experience working in the field of ageing and dementia care.
Introduction: Dementia and Human Rights;
Dementia as a Disability;
Setting the Context: The UN Convention on the Rights of Disabled People;
Human rights in policy and practice: the right to a diagnosis and to health and social care services;
Human rights in policy and practice: the right to a good quality of life in nursing homes or hospitals;
Implications of Human Rights Based approaches for Health Service Professionals;
Legal Capacity Dementia and Human Rights;
“This book is a down to earth, accessible translation of complex legal, sociological and ethical subjects and as such will appeal to undergraduate and postgraduate students of dementia, practitioners and policy makers alike.” Professor Kate Irving, Dublin City University